Windsor, Ontario

Terminal Illness - ALS

Diagnosed May 2015 at 41 years old.

My Right To Try:  

  1. I want a better quality of life.  I used to mountain bike, ski, and landscape.  I want the right to try a treatment that might restore those abilities.  I would take anything to stop or reverse the progression of this disease - I don't have much to lose at this point.
  2. ALS is an incredibly dis-empowering disease, mostly because you lose your independence.  I want as much control over my life as possible, and that includes having the choice of trying a new treatment not yet been approved while respecting the needs of physicians, Health Canada, and drug manufacturers.
  3. ALS is a rapidly progressing disease.  I cannot afford to wait for the drug-approval process to be completed.
  4. I want to keep hope alive. 

I've dedicated the remaining years of my life, driven to accelerate access to potential life-saving treatment for Canadian ALS patients.  I am an executive member of Canada's leading National ALS Charity, the Adaptive Canuck ALS Foundation (, and a founding member of the 'Right To Try Act'.

Support the 'Right to Try Act'.  Please consider making a donation of $5, $20, $50 or whatever you can.  Your contribution helps cover associated costs to retain representation, travel to meet with MP's, social, online & traditional media communications.  Currently, these costs are being paid by Canadian patients living with a terminal illness.   It is through the help and generosity of people like you that we are able to continue our work. Your compassionate support truly makes a difference!

Barry Law