'Right to try is a basic human right'
Gino Sissera, an ALS patient, and his father, Gennaro Sissera discuss the challenges of life with ALS and what the government can do to help
Terminal Illness - ALS
Diagnosed October 2013 at 31 years old.
My Right To Try: I want to try because currently there is no known cure or treatment for ALS. I am not willing to sit back and do nothing while this disease takes over my body. I don't have time to wait years for treatment approvals, and I believe it is my right to fight for my own life.
I've dedicated the remaining years of my life, driven to accelerate access to potential life-saving treatment for Canadian ALS patients. I am a founding member of the 'Right To Try Act', and an executive member of Canada's leading National ALS Charity, the Adaptive Canuck ALS Foundation. www.alscanuck.org
Support the 'Right to Try Act'. Please consider making a donation of $5, $20, $50 or whatever you can. Your contribution helps cover associated costs to retain representation, travel to meet with MP's, social, online & traditional media communications. Currently, these costs are being paid by Canadian patients living with a terminal illness. It is through the help and generosity of people like you that we are able to continue our work. Your compassionate support truly makes a difference!
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