In Memory of Mike Caputo

My Right To Try:  It's been a long and tiresome 19 years living with ALS. During that period of time, I have risked everything and will continue to do so.  I want my right to try because I have nothing to lose!  I don't need Bill C-14.  I want to live!   I want my right to try, so I can live 5 years longer with slight improvement to the quality of my life, and those around me.  I'm on my 19th year living life this way!   I choose the 5 years over the 18 years.  Please take this into consideration and give me the right to live.

I've dedicated the remaining years of my life, driven to accelerate access to potential life-saving treatment for Canadian ALS patients.  I am an executive member of Canada's leading National ALS Charity, the Adaptive Canuck ALS Foundation (, and a founding member of the 'Right To Try Act'.

Support the 'Right to Try Act'.  Please consider making a donation of $5, $20, $50 or whatever you can.  Your contribution helps cover associated costs to retain representation, travel to meet with MP's, social, online & traditional media communications.  Currently, these costs are being paid by Canadian patients living with a terminal illness.   It is through the help and generosity of people like you that we are able to continue our work. Your compassionate support truly makes a difference!


Toronto, Ontario
Terminal Illness - ALS
Diagnosed June 1998 at 34 years old. 
Passed February 2017 

Mike Caputo was our Fearless Leadership! Mike inspired the Right To Try Canada movement.  Thank you Mike for sharing 19 years of experience.  We will remember forever!  Unfortunately Mike was never given the Right To Try the most promising ALS treatment available.