My Right To Try: Prior to the onset of my symptoms, I was a normal, healthy 29 year old guy. My wife and I had been married for just over a year, we had just bought a house, and I was working hard to develop my corporate/commercial law practice in my hometown. In the fall of 2014, my legs suddenly stopped cooperating - they were still moving, but not the way I wanted them to. It happened almost overnight. Approximately one year and three months later, and after what seemed like an endless battery of tests, scans, blood-draws and needle poking, my neurologist told me that I had amyotrophic lateral sclerosis, an incurable disease that typically results in death within 2-5 years.
I want the right to try so I can plan a life with my wife Kayla, my best friend, who has been devastated by this disease. I want to spend quality time with my family and friends without being dependent upon them. I want to work at my law practice without worrying about losing my ability to speak or type. I want to contribute to society in a meaningful way. Although I recognize that the right to try cannot guarantee any of these things, it will at the very least give hope to patients suffering from terminal illnesses. It will give us a chance. It will give us the motivation to get up in the morning and keep fighting. In light of my prognosis, the benefits associated with a right to try law, however remote, far outweigh the risks. I want the right to try because I have nothing to lose.
I've dedicated the remaining years of my life, driven to accelerate access to potential life-saving treatment for Canadian ALS patients. I am an executive member of Canada's leading National ALS Charity, the Adaptive Canuck ALS Foundation. (www.alscanuck.org), founding member and author of the 'Right To Try Act'.
Support the 'Right to Try Act'. Please consider making a donation of $5, $20, $50 or whatever you can. Your contribution helps cover associated costs to retain representation, travel to meet with MP's, social, online & traditional media communications. Currently, these costs are being paid by Canadian patients living with a terminal illness. It is through the help and generosity of people like you that we are able to continue our work. Your compassionate support truly makes a difference!
Bridgewater, Nova Scotia
Terminal Illness - ALS
Diagnosed January 2016 at 31 years old.
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