My Right To Try: I had just returned from my annual ski trip with the boys. Skiing is a passion of mine. Before ALS, I was quite active. You name it, I'd play it. Good or bad, I'm in. What I enjoyed most was playing anything with 4yr old daughter and 9yr old son. Now I sit in a wheelchair and watch. That is the principle reason why I need the Right To Try. We haven't had enough time together. I have to do something. I'm trying now but there aren't any options. http://www.pitch4pete.com/
I've dedicated the remaining years of my life, driven to accelerate access to potential life-saving treatment for Canadian ALS patients. I am a founding member of the 'Right To Try Act', a major contributor in advancing the leading ALS science in Toronto via 'Pitch4Pete', and a member of Canada's leading National ALS Charity, the Adaptive Canuck ALS Foundation. www.alscanuck.org
Support the 'Right to Try Act'. Please consider making a donation of $5, $20, $50 or whatever you can. Your contribution helps cover associated costs to retain representation, travel to meet with MP's, social, online & traditional media communications. Currently, these costs are being paid by Canadian patients living with a terminal illness. It is through the help and generosity of people like you that we are able to continue our work. Your compassionate support truly makes a difference!
Toronto (Beaches), Ontario
Terminal Illness - ALS
Diagnosed February 2015 at 48 years old.
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