Terminal Illness - Carcinoid Neuro Endocrine Tumours
Diagnosed in 2013 at 31 years old.
My Right To Try: Hello, I am a 34 year old mother from Ottawa, with terminal cancer. I want my right to try, so my 2 year old daughter grows up with her mother.
There is one treatment in clinical trial that help me ( I was given 6 months to live, 2 years ago when my daughter was born). The treatment is working amazingly on me but I was kicked out of the trial because I got pregnant by accident ( despite that I was told I was infertile ). The doctors told me if I was getting an termination of pregnancy there was then NO reason why I couldn't continue the trial. One month after the termination, when I was going to London, ON to receive the treatment, I was told that I had been kicked out anyways. It was a very traumatic experience ( physically and mentally) . Today, Health Canada has given one option, and that is to die.
I was a very active women, backcountry skiing in whistler and running ultra marathon were my favourite activities. I am an engineer and was managing a 1.3 billion dollar project in Vancouver at the age of 31, when I was diagnosed. Today, I am now fighting for my life, to gain access to one particular treatment thats works for me.
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