My Right To Try: So I can access - not yet approved life saving drugs / treatments not attainable through SAP. I want to be a grandmother and spend time with family and friends. I want to continue to be an instructor for Roots of Empathy which is a passion of mine. I want to live.
After a year of testing because of difficulty performing fine motor activities, I was told I had ALS. It was not even on my radar so it came as a great shock. My husband, Bruce was about to retire and our goals were simple, to stay healthy so we could continue to care for our son, Mark who has special needs and visit our other son, Joel, who lives in London, ON.
I've dedicated the remaining years of my life, driven to accelerate access to potential life-saving treatment for Canadian ALS patients. I am a founding member of the 'Right To Try Act', and a leading member of Canada's National ALS Charity, the Adaptive Canuck ALS Foundation. www.alscanuck.org
Support the 'Right to Try Act'. Please consider making a donation of $5, $20, $50 or whatever you can. Your contribution helps cover associated costs to retain representation, travel to meet with MP's, social, online & traditional media communications. Currently, these costs are being paid by Canadian patients living with a terminal illness. It is through the help and generosity of people like you that we are able to continue our work. Your compassionate support truly makes a difference!
Truro, Nova Scoatia
Terminal Illness - ALS
Diagnosed March 8th, 2016 at 64 years young.
Copyright ©Right To Try Act Canada. All rights reserved.